The Lymphedema Advocacy Group is seeking applicants interested in serving on our Board of Directors for the upcoming term beginning in January of 2015. In particular, we are looking for a Board Secretary and Fundraising Chair (experience preferred). Other desired areas of expertise/experience are listed below my signature. If interested, please respond to this email, or contact us at info@LymphedemaTreatmentAct.org, to obtain an application.
On October 14th, Ohio State Team member Sarah Bramblette was featured on the show The Doctors. She talked about her experience living with lymphedema and lipedema, and why she is working to pass the Lymphedema Treatment Act. Click here to watch the segment. Our thanks go out to Sarah for her incredible advocacy!
Are you a member of your State Team? If not, please consider joining today! More information and a link to sign-up is available here. To date, we have teams started in 48 states. No experience is required and the time commitment is variable dependent on your interest and availability.
Please be sure to vote on November 4th if you haven’t already, and thanks for your continued support of the Lymphedema Treatment Act!
Heather Ferguson
Founder and Executive Director
Lymphedema Advocacy Group
www.LymphedemaTreatmentAct.org
info@LymphedemaTreatmentAct.org
Lymphedema Advocacy Group
Prospective Board Applicant Information
The Lymphedema Advocacy Group is an all-volunteer organization with a working board. We are seeking Board members with skills such as, but not limited to, the following:
- Legislative or lobbying experience
• Patient advocacy
• Non-profit experience
• Public relations - Social Media
• Fundraising
• Data entry and management
• Website maintenance
• Graphic design
• Writing and secretarial tasks
• Public speaking, preparing presentations - Medical or scientific expertise in the field of lymphedema
Essential Board Member Qualities:
- The desire to be an effective ambassador for the lymphedema community, knowledgeably raising awareness about lymphedema and advocating for the Lymphedema Treatment Act. The ability to actively participate as a self-directed team member in support of the Lymphedema Advocacy Group’s mission and goals.
• The willingness to learn how to effectively advocate, in a bipartisan manner, for legislative changes, if not already skilled in this area.
• The belief that improving the lives of patients who suffer from lymphedema overrides any financial or business interest due to affiliation with a lymphedema-related industry or service.
Core Board Member Responsibilities:
- Participate in Board meetings (held each odd numbered month) by way of conference call.
• Secure the co-sponsorship of your Representative (and Senators once the bill is introduced in that chamber), and if unable to do so obtain a reason why that member of Congress was unwilling, and share that information with the board so that that we can develop effective strategies for countering such reasons.
• Actively work to spread awareness, engage others, participate in your State Team, and secure cosponsors in addition to your own member(s) of Congress.
• Assist in organizing and executing, and whenever possible participating in, lobby trips to Washington, DC.
• The Lymphedema Advocacy Group has no paid staff, and is therefore a working board. Each member shall be responsible for at least one task essential to the functioning of the organization (i.e. hold an Officer position, serve on a committee, or execute a specific duty) in addition to the general responsibilities listed above.
