Private Insurance

If you have any type of private insurance plan your coverage is determined by your plan and you should contact your insurance company for details.

It is our goal to ensure that all plans eventually adopt the same comprehensive coverage now provided under traditional Medicare, thanks to passage of the Lymphedema Treatment Act.

There is information below regarding other laws that may affect your coverage, depending on the state in which your insurance is based and the cause of your lymphedema.

If you have been denied coverage by your insurance plan please use our Denial Reporting Form. It is important that we hear from anyone who is not receiving coverage so that we can work to address remaining coverage gaps. Additionally, follow the steps on our Contact Your Insurance Company page.

Additional coverage protections may be available to you if you fall under one of the following circumstances:

  • If you have an insurance policy based in North CarolinaVirginia, or Maryland these states have enacted lymphedema treatment mandates requiring most private plans sold in those states to cover lymphedema treatment compression supplies. Additionally, California and Louisiana have passed laws that improved coverage for compression supplies. Click on the name of each state for further details.

  •  If you are a woman with breast cancer-related lymphedema you may have additional rights and coverage afforded to you under the Women’s Health and Cancer Right Act.

  • If you have Primary Lymphedema, and particularly if you are a parent of a child who was born with lymphedema, most states have laws requiring private insurance policies to cover treatments for congenital anomalies, and this includes congenital primary lymphedema. A list of these state laws has been compiled by another organization that works in the area of congenital anomalies.