Your story will support our ongoing efforts to improve insurance coverage and access to care, and may be shared, in part or in full, with policymakers, the Centers for Medicare and Medicaid Services (CMS), and/or other relevant entities. If shared with a state or federal lawmaker, your contact information will be included to show that you are a constituent. With your permission we will also post your story on our blog using only your first name.

Yes – a sampling of submitted stories will be periodically posted on our blog.

In general, it’s best to keep your story concise and limited to 500 words or less if possible.


If you are not a patient, you still have an important story to tell about the lymphedema patients whom you treat or care about. Share how better insurance coverage or expanded access to care would help them to manage their lymphedema.


If you are a patient, some of the things that would be useful to include are:

• State why you have this swelling (very brief, no more than a few sentences).
• What compression supplies do you need to manage your swelling and why are they essential?
• Are you no longer able to work or perform activities of daily living, or struggle to do so?
• Have you had infections or other complications requiring costly hospitalizations?
• If you are not able to wear regular shoes, how has this impacted your life?
• Have you ever been denied coverage for any of your treatment supplies or services, and what difficulty did that cause you?
• How will your health and quality of your life be improved through better insurance coverage and/or expanded access to care?