A variety of free educational materials for patients, healthcare providers, and suppliers are always available through our Educational Materials page. We hope you will use these resources to educate others about lymphedema and the insurance coverage available to them.
I’d also like to extend a big thank you to everyone who has already donated to my Birthday Fundraiser in support of our work to improve patient care! I am now halfway to my goal. If you’d like to contribute, the fundraiser will be open until the end of August.
The backstory… 20 years ago, I was 8 months pregnant with twins, and had never heard the word lymphedema. When my sons were born in September, one had some unusual swelling, but doctors brushed it off as “nothing to worry about.”
However, after a couple of months, that swelling had progressed to severe pitting edema in both legs and feet, and after an arduous and heart-wrenching process, my son Dylan was eventually diagnosed with primary lymphedema.
Then, to add insult to injury, when he was seven-months-old, he was prescribed his first set of compression garments and they were denied. As the saying goes, the rest is history… this injustice led me to dedicate myself to closing this gap in coverage for my son and all patients.
We’ve come a long way, but there is still more to do, and your donation will support our continued work to improve insurance coverage, increase access to care, and improve quality of life for patients throughout the country.
If you do not use Facebook, you can also donate via check or online by visiting the Donations page on our website. All donations are tax-deductible, and every dollar makes a difference!
Heather Ferguson
Founder & Executive Director
Lymphedema Advocacy Group
LymphedemaAdvocacyGroup.org
