When we were working to pass the Lymphedema Treatment Act, patient stories were a vital part of building support for the bill. In much the same way, the information shared through our Denial Reporting Form allows us to not only identify problems, but also enables us to share real-world examples of how coverage issues negatively impact access to care and patient outcomes.
While no personal identifying information is ever shared, being able to cite specific examples is absolutely essential when trying to influence policy change. We are presently preparing outreach on two issues in particular, so we especially need to hear from you if you have experienced a coverage issue related to one of the following:
- Have received a denial for or had difficulty finding a supplier who accepts insurance for standard-fit compression gloves.
- And as previously shared, denials under any type of Aetna insurance plan, especially for the treatment of lymphedema in non-limb areas of the body (head, neck, chest, trunk, or pelvic region).
Please use our Denial Reporting Form if you are experiencing a problem related to one of the issues above, or to share any other instance of denial, insufficient coverage, or other access to care issue. Thank you for your advocacy — your voice matters and fuels change!
Heather Ferguson
Founder & Executive Director
Lymphedema Advocacy Group
LymphedemaAdvocacyGroup.org
