I have the honor of serving as a Patient Advocate and Discovery Duo team member for lymphatic research currently being conducted at Rice University. As such, I’m thrilled to invite you to participate in this opinion-based research study about lymphatic disease.
The survey will help our research team to better understand key issues that impact the experiences of patients living with lymphatic diseases, including barriers to diagnosis and treatment, insurance and cost considerations, and patient and provider education and awareness about lymphatic diseases.
We are inviting you to participate in this survey to share your thoughts and experience. Your insights are very valuable and can help improve the way lymphatic diseases are diagnosed and treated in the future.
We are seeking input from lymphatic disease patients, caregivers, healthcare providers, healthcare coverage payers, and leaders in lymphatic disease advocacy. The survey takes about 25 minutes to complete. Participation is voluntary, and all information will remain confidential.
Rice University and RTI International, a non-profit research organization in North Carolina, are conducting this study on behalf of a federally funded agency that supports innovative research programs to help drive biomedical and health breakthroughs.
This is an important research effort, and we hope that you will be part of it. Feel free to share this email or the survey link with others who fit the inclusion criteria and may be interested in participating. Your input will help advance care for those with lymphedema and other lymphatic diseases. Thank you for your time and consideration of this opportunity.
Heather Ferguson
Founder & Executive Director
Lymphedema Advocacy Group
LymphedemaAdvocacyGroup.org
